Imagine being able to hear everything that’s going
on in your body, your blood flowing through your veins, your heartbeat etc, and
not being able to control it.
Well that was the daily torture
for Julie Redfern whose hearing became so acute it amplified sounds that are
normally never heard.
She has a theory that the
condition developed as a result of a bike crash she had when she was 24 but as
she ages, she started to notice them shortly after her 40th birthday as she sat playing the computer game Tetris and heard a strange
squeaking noise as she followed the bricks from side to side, before realizing
it was her eyes.
She said “It was a horrible sensation, I could
literally hear them moving, scratching, it was very weird.”
She had to give up dining in restaurants with friends because she couldn’t hear a word they said over the sound of her own chewing.
Mrs Redfern, 47, also had to cut
out crunchy foods like apples and crisps because of the deafening noise in her
head as she ate.
Her job as a receptionist became
an ordeal because when the phone rang on her desk the vibrations would make her
eyeballs audibly shake.
But after seven years of
suffering she may finally be able to cut out the sounds thanks to pioneering
surgery to plug up her acute hearing.
It was a horrible sensation, I could literally hear them moving, scratching, it was very weird.’
She was referred to Manchester
Royal Infirmary where she had a scan and was told she was suffering from
superior canal dehiscence syndrome (SCDS). SCDS is a rare medical condition
of the inner ear caused by a thinning or honeycombing of a bone in the ear, which
causes over-sensitivity to sound. Some people may be born with missing bone, or
very thin bone, which “dissolves” with increasing age or may be damaged by a
blow to the head.
After the operation which carried the risks of deafness, the surgeon had to fill in the holes on the bones to stop the sound travelling through them.
Mrs Redfern said: ‘Even though
there were risks I had to have it done, I couldn’t have coped with it for
another 40 years, seven was enough.’
After having one ear done she is
now aiming to have her second ear operated on which will hopefully lead to a
complete cure.
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